Wednesday, October 3, 2012

Justin is CANCER FREE!!!!


Psalms 30:2-3 “O Lord my God, I called to you for help and you healed me.  O Lord, you brought me up from the grave; you spared me from going down into the pit.”

Praise God!  He has healed my husband and he is now considered cancer free!!!

A week ago today Justin went in for his 3 month body scan and MRI to see if the cancer was gone completely or if it had spread.  Statistically it was to be expected to most likely have spread to another location in his brain.  We were both prepared to hear the worst.  But yet we both had peace about it.  So even though we were going in with high hopes, we also were prepared to be told that it had spread and that he’d be going back under the knife for more brain surgery.  But God is good! 

First of all his body scans came back clear!  His MRI of where they surgically removed the tumor 3 months ago came back clear!  And the other tumor that they did radiosurgery on was still there and had grown a tiny tiny bit but the doctor was positively certain that the tumor was dead (meaning it was cancer free) and the size increase were only a result of the brain still swelling from surgery and radiation.  So completely normal.   Some people have asked how can Justin be cancer free if that tumor is still showing that it’s there???  Well the best way I can describe it is, think of if an animal was shot and killed with a gun.  Yes the animals’ body would still be there even though the animal was dead.  So same thing with the tumor; the tumor is still there but its dead, meaning it’s cancer free and not growing anymore.

Can you believe this???  I still feel as if we are living a dream.  This miracle is sometimes too much to wrap my mind around at times.  We were so use to constantly receiving bad news at every appointment and every previous scan that it was almost becoming the “norm”.  I’ve had tears of joy on a few occasions this past week.  My God has healed my husband.  We both have a breath of fresh air, almost the feeling as if he’s had a second chance at life.  We both have learned so much this past year about ourselves and our walks and faith.  And even though you might think this is crazy, if we both had the chance to not go through this trial the last year and a half I know we both would choose to face it all over again.  There’s a sense of joy to know that God has used you to be part of his miracle.

Praise God!  My husband is cancer free!!!

So what’s next??.......This past Monday we were at Moffitt and Justin was getting screened, more test ran, blood work, and consent papers to sign for the trial drug that he will be on for the next 2-3 years at least.  This is basically our only option right now and it’s either this drug or do nothing.  Well we chose to take this preventative drug in hopes that the cancer doesn’t return.  Justin’s oncologist thinks very highly of this trial drug.  It’s only been out for 2.5 years and in the words of Justin’s oncologist, he said “before this drug I’d give Justin 2-3 months”.  So in other words this drug is going to be the miracle drug.  But we know the miracle healer is God! 

Praise God for working another miracle and healing my husband!

So what is this trial drug???.......It’s a Phase 1 trial of a vaccine combining multiple class I Peptides and montanide ISA 51 VG with escalating doses of Anti-PD-2 Antibody BMS-936558 for patients with resected Stage IV Melanoma, NCI protocol P-8316.  For those of you who understand what that means; Great!  For those of you like me who don’t understand that, than just know that it’s a trial drug that Moffitt is doing to see if they can prove that this medication will prolong or prevent Melanoma from coming back.  Right now it has not been proven but they are having a great success rate at about 30%.    However Justin should feel privileged, because he is 1 of the 30 people in the whole world who have ever been treated with this drug.  Up until now there have only been 29 people who have taken this drug.  So he’s the lucky 30th person.  So with only 30 people it’s hard to have too many factual statistics just yet.  But the good news is, since it’s only a Phase 1 trial he will have the actual drug and NOT the placebo.

Side effects…….Well the paperwork says that there may be side effects that aren’t known yet just because the drug is so new.  But some of the likely ones so far have been nausea or urge to vomit, fevers and chills, fatigue or tiredness, headache, joint pains, diarrhea, abnormal function of the thyroid gland, inflammation or damage to the tissue surrounding where the drug is injected.  Itching, Skin rash with presence of macules and papules.  And then the less likely side effects are; well let’s just not even mention them because we hope he doesn’t experience any of them.   And then of course there are always those couple people who don’t have any side effects.  And we are hoping for that!

His treatment schedule will be…….For the first 6 months he will go once every two weeks for a 90 minute injection and then 6 shots in his leg.  These will be about 5 hour days at Moffitt.  Than after those first 6 months assuming everything is going good he’ll than only go once every 3 months for the next 2 years.  If not longer.  One of the questions we had was what happens when he stops taking this drug?  Will the cancer come back immediately or not at all?  The doctor couldn’t answer that because he said it’s so new they haven’t had anyone come off the drug yet so he’s not sure what will happen.  He actually said the next question he has for the drug company is how long can a patient stay on this drug.  If it prevents it from coming back can he stay on it for life?  We don’t have an answer to that yet.  Right now he’s just the 30th ginny pig to take this and we are hoping he’s the 30th miracle story that the cancer is gone for good!

So our journey isn’t over yet.  We still have a lot ahead of us.  But that’s not stopping us from rejoicing and praising our heavenly father that he has cleared his body of the cancer completely right now even though statistically it shouldn’t be. 

Did I say Praise the Lord my hubby is cancer free!!!!!

I don’t think I mentioned yet but his treatments start tomorrow.  We will be arriving at Moffitt bright and early at 7:30am. 

I can’t thank you all enough for your prayers and support throughout this last year and a half.  Justin made a comment the other day, he said, “I wonder how many people have prayed for me?”  It’s actually an overwhelming thought when you think about it because we’ve had people in other states that we don’t even know contact us and say they’ve been praying.  God says where two or more are gathered in his name…..Well I think it’s been more like hundreds or thousands or more for Justin.  He is truly a miracle in the making. 

My hubby is cancer free!!!!

I’ll be driving down the road and I’ll just get goose bumps and a big smile across my face when I think about it.  God is good and we are to praise him in the storms but boy is it so much easier to praise him in the glory times!

But I encourage each of you to NOT stop praying.  God answers our prayers.  May not be in our timing or with what we think is best but he does answer them in his perfect timing with his perfect answer for our lives.    God heard our pleas…..  I thank you all!  I just wish you all could see our hearts and the gratitude we have for each and every one of you because your prayers were heard by God which in result YOU were part of the miracle!

And I just want to say one last thing.  My husband is awesome!!!  We were having lunch the other day together.  Just the two of us.  I looked across the table at his handsome face and all the outwardly scares that this battle of cancer has left him.  Some are permanent scares and others will fade with time.  But they are all a reminder of what he’s been through.  He’s been through hell.  A hell that most people including myself would probably just give up and say I’m done!  But he hasn’t done that.  He has been so strong and positive throughout this whole process.  He has woken up and gone to work to provide for his family on days were he probably just wanted to stay in bed because he felt so sick.  He’s pulled himself together and attended family functions for the kids and I when he probably would rather not leave the house.  He has put a smile on his face and spoke positive words when others would only see the negative.  He jokes and makes light of his outwardly scares and if it weren’t for those scares people wouldn’t even know he is sick because he handles it so well and looks so great.   He has faced this tough battle, the past year and a half, head on with the best attitude that just leaves me amazed that someone can handle such a tough time so great!  I am so proud of him!  And with that I pray that he has no negative side effects from this drug. 

Here’s to the next chapter of our life…….The next 3 years of Justin’s treatment.

Luke 18:27 “What is impossible with men is possible with God.”