Thursday, June 30, 2011

Justins Melanoma Surgery at Moffitt on June 30th, 2011

Its been a long long long day but we made it home safely and Justin is passed out at the moment on the couch.  We are so blessed by so many phone calls, emails, texts, facebook messages, etc that we received today.  I wish I could have responded to each and every one of you but it was quite overwhelming.  So please don't take it personally if I didn't get back to you but know that we did receive it and we thank you.  We can't thank you enough for being such an encouragement and prayer warrior for us.
We left the house around 8am this morning.  We both got a little sleep last night.  I tossed and turned.  Justin might have gotten a few hours if he was lucky.  But we woke and were ready to face the big day ahead.  My mom gave us a great devotional that we both have loved.  I brought that along with us and I read to Justin in the car as we drove over.  Gods presence is amazing.  I could feel his presence in the car with us as we drove over and as I was reading to him.  We than listened to some christian music that a sweet friend burned for us on a CD to listen to.  We talked about how blessed we were to have such great people in our lives to carry this burden with us.  You all have touched us in one way or another.  And I thank you for that.
We arrived at Moffitt at 9am for pre-op appointments before his 1pm scheduled surgery.  I thought the morning would drag by but it literally flew by.  This first picture is of Justin when we first arrived this morning.  He is watching a movie on his IPad.  He literally watched it for about 4 minutes before he was called into the first appointment and it was back to back appointments from there on out with no time to watch any more movies. :)
His first appointment consisted of them putting a needle into his head where they injected some dye to see the pattern of the lymph nodes from the infected cancerous spot.  They marked the first 4 lymphnodes in his neck with a marker and than a fifth lymphnode on his chest.  The markings on his outer skin with the marker showed the surgeon which location of lymphnodes they would be removing to biopsy.  This took a little over an hour to be done.  So it gave me time in the waiting room to read my devotions and shed some tears so that I could be strong for him the rest of the day; which I was.  I just needed a little time to myself to release some tears and than I felt like superwoman the rest of the day and could handle this. :)
The next picture is Justin in the pre-surgery room where he was stripped down to a gown and hooked up to lots of IV's getting ready for surgery.  He is watching TV so thats why you can't see his face.  He prob was annoyed with me at this point with me taking pictures. :)  But don't worry I had his consent first. :)


After he was all hooked up and ready and after we meant with all the different doctors and nurses I kissed him goodbye and they rolled him away to go into surgery promptly at 1pm.  The surgeon told me it would take about an hour however it was more like 2 hours.  I think that was the longest 2 hours of the day.  I sat in the waiting room with some family and kept watching my clock.   But still feeling strong.  But yet very nervous of the outcome. 
About 3:05pm they called me to come see the doctor and than meet Justin in recovery.  I briefly spoke to the doctor.  He told me they removed all 4 lympnodes in his neck.  The 1 lympnode on his chest they cut him open and noticed it was behind a bone which was difficult to get to so they decided to leave that one in place for now.  They than cut out the area on his face which was large enough that he did have to have the skin graft done.  No, they did not take skin from his butt so you all can't call him buttface. :)  They took the skin from his thigh.  The doctor said it will all be sent out for testing and we will know at our next appointment which is July 8th if the cancer has spread to the lympnodes.  I asked the doctor what his gut feeling was and like many doctors they don't want to give you a straight answer but some vague response.  He said until they look into the area microscopicly they can't tell if the lympnodes have cancer or not. However our prayer is that they have NOT moved to the lymphnodes and this will be his last surgery.  However if they have moved than we'll discuss other treatments like radiation/chemo. 
The doctor than took me into recovery to see Justin.  He was still passed out at this point and hadn't woken up yet from the surgery. I walked in and saw my sweet husband and instantly wanted to vomit and start crying.  Its so hard to see someone you love so much be in so much pain and hurt.  But I knew I couldn't break down and I had to continue to be strong.  I walked over and gave him a kiss and held his arm waiting for him to wake up.  I wanted to be the first face he saw when he peeked an eye open.  He finally woke up enough for the nurse to prop him up and start getting him ready to head out the door.  I honestly can not believe how fast they push you out.  I meant with his social worker, got instructions from his nurse and we were on our way out the door.  I have to be honest it was a little scary.  I felt my hubby was still in lala land and I was now responsible for him!  How was I going to get him in and out of the car........
Here is a picture of him as we were leaving Moffitt. 


Well I passed the first test and I got him into the car.  I hardly made it out of the parking lot and he says he wants Krystals.  I looked at him and laughed and said I don't think so.  He insisted that we stop and get him Krystals.  So being the great wife I am, we headed straight to Krystals to get him 4 handburgers; however he only ate half of one of them and than passed out again.  I slowly drove home in the monsoon rain storm during rush hour traffic praying that God will give me the strength to be the best nurse I can to him.  And thanking him that we made it through the day.  About 10 minutes before we get home he wakes up and starts dry heaving into a bucket in the car.  I didn't want to say "maybe you shouldn't have ate Krystals!"......instead I kept my mouth shut and rubbed his back with one hand while driving with the other hand and praying he doesn't vommit all over my car.  I think that might be my limit of being superwoman.  Thankfully once again God heard my prayer and the dryheaving never progressed to anything else. :)
We made it home and were welcomed by a sweet sign on the front door and banners and balloons from our three precious babies.  Mommy broke down in tears with just the thought that my 3 precious babies have a daddy who has cancer but all they know is he had surgery on a booboo because we don't want to scare them.  They know their papaw died from cancer and I don't want them to think that just because papaw died from cancer doesn't mean that's going to happen to daddy.  I don't want them to live in fear but to only have happy thoughts in a carefree world at ages 7, 4 and 18 months.   

So sweet.  Our kiddies were busy today with grandma!



And here is my superhero.  All bandaged up and passed out.  He was such a trooper today.   And I was so proud of him!  He had such great spirits and was talking and joking with all the nurses and workers and everyone around him.  He brought joy to many people at Moffitt today.


Here is a picture of his leg where the skin graft was taken from.  He keeps saying it feels like its on fire.  The nurse said it basically feels like a really bad burn.  And not only that but it'll ooze like a bad burn.  We have to wrap it in a diaper with the bandage over it and they said its normal to soak through the diaper with ooze......Yummy!........ 
My sweet hubby.  I love him so much.  Its been such a long long day but we are home where we feel safe and the long awaited surgery day has finally come to an end.   Now its all on me to take care of him.  I'm the nurse on duty.  But i'm exhausted myself.   And its going to be a long night of waking every few hours to give him medicine and console his pain......kinda like having an infant again.....But i'm happy to do it.  Theres nothing more in the world i'd want to do but be right by his side.  Thank you to my family for keeping my 3 precious babies so I have all the strength and attention for Justin.  Thank you again family and friends.  You all are great! 
Our next appointment is on July 8th, next Friday, and we will get the biopsy results then.  Its scary thinking about it.  Of course the worst goes through my head.....  But i'm staying positive that the lymphnodes will come back clear and that we can only go uphill from today.  We do have the Ultimate Healer on our side!   So I'm staying confident with that. :)
Good Night.   XOXOXOX 
                                               

Wednesday, June 22, 2011

Hope & Jaydens 1st Rays game-June 18th, 2011

Thanks to some very dear friends of ours, we were able to go here!
We took Hope and Jayden to their very first Rays game this past weekend. 

Jayden spent 6 full innings asking Daddy every single question he could possibly imagin to ask. Daddy was trying to not get irritated by the non-stop babble of Jayden.

Hope wanted to know if this was the Superbowl. lol  I laughed and said no.  That this is the sport called Baseball, not Football.   So she than spend 6 full innings doing different modeling poses, hoping to get on the big screen. 

By the 6th inning; Jayden was breathless from all the questions he had asked and Hope was tired from all the posing.  So we decided to leave.
Mommy and Daddy enjoyed the special quality time with our two oldest.  However next time we might go by ourselves. lol

Wednesday, June 15, 2011

We are so blessed!

Thank you, Thank you, Thank you!  We have been so incredibly blessed by so many of you in last 9 days.  I call you my “Angels” because you have touched us more than you could even imagine.  The love, support, gifts, prayers, babysitting, letters, emails, phone calls, house visits, cards and texts have encouraged Justin and I when we felt discouraged.  I wanted to share with you just a few of the Bible verses and songs that have been shared with us in the last 9 days.  Because I know we all face our own trials in life at different times.  I know some of you are going through difficult stuff right now in your life.  Things that make our situation seem so minor.  So I wanted to share these with you to hopefully give you some encouragement also.   I love you all and thank God for each and every one of you.  You have been such a blessing to us and You are so very special! 

You will guard Autumn and Justin and keep them in perfect and constant peace whose mind is stayed on you, because they commit themselves to you, lean on You, and hope confidently in You. *Isaiah 26:3*
The Lord our God is with Autumn and Justin and He is mighty to save. *Zephaniah 3:17*
By His wounds, Justin is healed! *Isaiah 53:5*
*Hebrews 11*
Trust in the Lord with all your heart, and lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths.*Proverbs 3:5-6*
Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God which surpasses all understanding will guard your hearts and your minds in Christ Jesus. *Philippians 4:6-7*


The Lord is my light and my salvation, so why should I be afraid?  The Lord is my fortress, protecting me from danger, so why should I tremble? *Psalms 27:1*


The Lord is good, a strong refuge when trouble comes.  He is close to those who trust in Him. *Nahum 1:7*


The Sovereign Lord is my strenth! He makes me as surefooted as a deer, able to tread upon the heights. *Habakkuk 3:19*


Give All your worries and cares to God, for He cares about you. *1 Peter 5:7*


Don't be afraid, for I am with you.  Don't be discouraged, for I am your God.  I will strengthen you and help you.  I will hold you up with my victorious right hand. *Isaiah 41:10*




You Tube videos/songs


Tunnel by Third Day
http://www.youtube.com/watch?v=S7V5t9ECZXo




Stronger by Mandisa
http://www.youtube.com/watch?v=U3TPq8ZSvTk




Everything is Beautiful by Ann Marie Boskovich
http://www.youtube.com/watch?v=Ox03FcC7eao




You Give Me Hope by Between the Trees
http://www.youtube.com/watch?v=Q-ywn6SJELs




Hope Now by Addison Road
http://www.youtube.com/watch?v=IVIwsk7CaPw




Love Story/Blessings by Laura Story
http://www.youtube.com/watch?v=1CSVqHcdhXQ




Lastly I know many of you have asked about the surgery date.  We are still working on a surgery date.  We are doing some research to make sure we have the best Plastic Surgeon/MD at Moffitt.  Since Justin is having a skin graft on his face done we want to make sure we have the best doing the work.  So thank you for the continued prayers and as soon as we finalize a Plastic Surgeon and date I'll be sure to let you know.   

Monday, June 13, 2011

The dreaded phone call-June 13, 2011

I've always loved reading blogs and about a month ago I told a dear friend of mine that I wanted to start a family blog to help capture memories of my precious babies.  I was not intending to start the blog about my husband who has cancer..........but here we are.


Last Monday, June 6th 2011, around 4:30pm, Justin received a phone call from his dermatologist asking that he come into the office immediately.  Justin had had two moles removed the previous week and had stitches that were scheduled to be taken out on Wednesday.  So he asked the nurse if he could just see the doctor on Wednesday when he comes in to have the stitches removed.  The nurse said absolutely not, that the doctor needed to see him in the next 30 minutes before the office closed for the day.  He said "okay, I'll be right in", hung up the phone, gave the kids and I a kiss goodbye and said he'll be back shortly.  At this point I assumed that the mole was probably precancerous and that they would remove a little more in the office and all would be well.  I'm not much of an overly paranoid person so I wasn't too concerned. 


About an hour later Justin called me and said “the doctor said I have cancer and they are sending me over to Moffitt Cancer Center to be treated”.  Now I started to get a little nervous but tried to stay positive and I continued to cook dinner and take care of the nightly routines while Justin talked on the phone and searched the internet.  The kids laid down for bed that night and I went to talk with Justin and look at his diagnosis report.  I obviously didn't understand any of it so we searched the internet together about everything the report said.  That was not a good idea. As the internet only scared us more.  We both went to bed that night with lots of fear, anxiety, unanswered questions and puffy eyes (well at least me ).  The next morning brought a little more peace.  A dear friend of the family who is a nurse read Justin’s diagnosis report and reassured us that everything was going to be okay. 


We were scheduled to leave for St Augustine on Thursday for a romantic 4day trip but we canceled it because our appointment was scheduled for Friday morning at Moffitt.  It was a rough 3 days as we waited in anticipation as to what the doctor would tell us on Friday.  Many thoughts ran through our head.  But we had many friends and family praying and that brought us some peace.


Friday morning finally came.  We both dreaded going to Moffitt, but especially Justin, since the last time we were at Moffitt was to say good bye to his dad, Jack, who lost a battle with cancer himself. But God had a purpose for it all so we got ready and headed to Tampa.  We arrived at Moffitt about 30 minutes before our appointment.   I sat in the waiting room watching everyone walk in and out of the building and questioned God while my husband was the youngest person there.  My husband shouldn't have to deal with cancer at such a young age........he is only 31!  Why God are you bringing us here and everyone around us is 50 plus?  And within the next few minutes I was thanking God that we were there at such a young age because that means we caught it early and God is going to heal him!  I was thanking him for that appointment!


We meant with the doctor.  He told us that Justin had a very large area of Malignant Melanoma and gave us our plan of action.  He told us that Justin will have to have surgery again to make sure all the melanoma is removed and because they will be removing such a large area that he'll have a skin graft done on the area.  They also will be cutting into his neck to biopsy his lymph nodes.  He will be sent home, hopefully the same day, and will be in recovery at home the next 2-3 weeks.


We then will wait 10 days from the surgery to get the results of the biopsy of the lymph nodes.  If everything comes back clear than Justin is cancer free and will only have to go back to Moffitt for checkups every 4-6 months for the next 2 years.  However there is a 25% chance that the Melanoma has moved to the lymph nodes.  If that has happened than they will schedule another surgery to remove the lymph nodes and continue with further treatment that will be discussed at that point.  The doctor then sent us on our way to get a chest X-ray and blood drawn.


I left the appointment feeling at peace.  The Almighty Healer is on our side and he's going to heal Justin!  By His wounds, Justin is healed! Isaiah 53:5.


We've both gone through many emotions as can be expected.  I pray you continue to pray for my husband that God would give him a peace that only he can give.  Please also pray for the surgeon that will be working on Justin.  That he will be able to remove ALL cancer and that the skin graft will be unnoticeable.


I will try to use this blog to send updates as I know many of you are concerned and telling the story 96 times on the phone can be draining.  I thank you for the prayers, love, support and encouragement.  I’ve already seen God in this situation in so many areas, from the first one being that he gave Justin the instinct to have this mole looked at.   We will hopefully get a surgery date tomorrow and it should be scheduled within the next week or two. 


Love to you all!
Autumn